this post was submitted on 04 Jan 2024
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[–] SomeoneElse@lemmy.ca 2 points 10 months ago (1 children)

It is most certainly not easy to revert. I was on it for 15 years and now have permanent, irreversible damage to my macular. I also can’t take hydroxychloroquine at all anymore because I will go blind.

But my doctors messed up and didn’t checked my eyes for over a decade. Once the usual optician spotted it, it was too late. If you see an ophthalmologist every year, they should spot any issue before it’s too late.

[–] SpezCanLigmaBalls@lemmy.world 2 points 10 months ago (1 children)

Yeah sorry that's what I meant, catching it before it's too late. I'm really really sorry you're experiencing this, that is terrible.

[–] SomeoneElse@lemmy.ca 1 points 10 months ago (1 children)

Thanks. I was angry for ages, now it’s just another lupus gift - nothing to be done except get on with it. Wishing you many more good days than bad!

[–] SpezCanLigmaBalls@lemmy.world 1 points 10 months ago

Same goes to you!