[-] liv@kbin.social 34 points 5 months ago

I have to disagree! I freely mod a conservative sub in my spare time.

It has definitely not been taken over by fascist snowflakes.

As proof, you are welcome to come and see for yourself: ☆ kbin conservative community

[-] liv@kbin.social 23 points 7 months ago

This literally happened to me, only I lost way more than half my income.

It's horrible, and frequently remembering the life I had is very painful.

I can't work out what possible upside you think there is to this situation.

[-] liv@kbin.social 4 points 7 months ago

You can also do temp work, English language teaching, proofreading, data entry.

[-] liv@kbin.social 11 points 7 months ago* (last edited 7 months ago)

You may have something different but if you have me/cfs you need to hit up the support groups, you can prove disability with a 2-Day CPET test.

I'm not in the US but many of the Americans in my support group were denied the first time they applied and got it on the second.

[-] liv@kbin.social 4 points 10 months ago

there are a lot of unintuitive things going on with the science of climate change

But science isn't intuition-based. It often comes to conclusions that are far from intuitive.

[-] liv@kbin.social 9 points 10 months ago

Midlife crisis?

[-] liv@kbin.social 4 points 10 months ago

Great news, he has sorted it out for me! Thank you for suggesting it!

@conservative is saved!

[-] liv@kbin.social 4 points 10 months ago

Ahhh, I'm so disappointed, I've been working on @conservative for months, and really hoping to take it on,
and it looks like I missed out.

Back when I started they actually held a poll about whether my kind of nature content would be OK and it was voted yes, so I hope the new owner is pro-conserving things and doesn't purge it and turn it into just another US politics sub!

[-] liv@kbin.social 4 points 11 months ago

If you have been diagnosed with this I suggest you seek a second opinion.

Unfortunately there is a long and shameful history of certain doctors ignoring the physical aspects of me/cfs and trying to class it as psychosomatic or a conversion disorder.

Multiple sclerosis used to have the same problem and was seen as "hysterical paralysis".

[-] liv@kbin.social 3 points 1 year ago* (last edited 1 year ago)

Not that I can find so far.

Despite the boost in numbers, I think making the jump from reddit has been too labour intensive for LC/PASC and ME/CFS communities. It's the one thing I still visit on reddit.

It's not much, but I am beginning to put a bit of data on !mecfs@kbin.social, and longhaulers are welcome there. It also collects mastodon toots on related hashtags.

[-] liv@kbin.social 5 points 1 year ago* (last edited 1 year ago)

On the surface it is an order. He's using imperative sentence construction with no "please can you" and no question mark.

This is exactly how commands/orders are expressed in English.

"Do this" "Come here" " Go there" "Sit Down" "Give me 20 press ups".

[-] liv@kbin.social 4 points 1 year ago* (last edited 1 year ago)

For example, myalgic encephalomyelitis (sometimes referred to as chronic fatigue syndrome) has been dismissed and under-researched for decades. The lack of research has perpetuated a limited understanding of the underlying biology, a lack of diagnostic testing, a lack of respect for patient experiences and an embarrassing lack of action. Research funding is extremely low relative to the burden of the disease and its prevalence.

About half of long COVID patients also meet the diagnostic criteria for myalgic encephalomyelitis. By our sheer number, our advocacy for more research and clinical trials should be harder to dismiss.

This is dismissed and underfunded world-wide.

The status quo - pretending it's all in your head - is in the interests of insurance companies (and governments with disability welfare systems).

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liv

joined 1 year ago