Myrhial

joined 1 year ago
[–] Myrhial 4 points 1 year ago (1 children)

I feel that autism also belongs in that list, due to the different presentation in women, and the underdiagnosis because of masking. Adhd/autism pairing also happens. If a person then already doesn't have trauma, they risk encountering it. Ofc I also very much agree bio markers like thyroid must be investigated.

[–] Myrhial 14 points 1 year ago

My partner was admitted to the hospital when they couldn't inflate his collapsed lung, as it had a hole in it. They put him on a machine that uses negative pressure to keep the lung shaped as it should be. Normally the hole should close but it wasn't. Ended up with surgery but the problem remained. They were coming up with increasingly outlandish theories as to why it wasn't healing, even going so far as to test him for tuberculosis, and listing him as false negative for covid. They also denied him adequate pain management, until one nurse noticed and gave him ibuprofen to go with paracetamol. This was all when the covid vaccine was only just out so I had to sit by helplessly while I'm increasingly realising the level of care he is receiving doesn't match my expectations. But he's never even been in a hospital and self advocacy is not something he's learned.

Eventually they transfer him to a larger hospital. The doctor there doesn't want to talk straight but between the lines you get the message that he feels the case was entirely mismanaged. They immediately lower the reverse pressure. Hold off on further surgery. Within days healing begins. A week later the lung is healed. It's a miracle...

Anyway, we looked into legal options but there was a lack of proof. The original doctor followed procedure. Yet I'm 100% convinced that because my partner smokes, has bad teeth and looks like a metalhead, there was prejudice at play. I can't know for sure but I feel like the original doctor blamed my partner and figured she'd have to scare him straight. That didn't help of course, he resumed smoking and he's unwilling to seek help because of this experience. I'm honestly shocked at how this could happen, but as time goes on I've seen in other situations how people immediately conclude a person is lower class and thus must be treated differently. If you do one thing for yourself, look into self advocacy. Especially when it comes to medical stuff. My own level of care started to go up when I began to have a conversation with health professionals, outlining my experience and asking many questions. But I'm a middle class woman with fairly conventional looks, so there is a whole level of prejudice I immediately don't face.

[–] Myrhial 9 points 1 year ago (1 children)

I'm here and very much in favour of scaling down versus having the money run dry. As others have stated I prefer this small instance because it allows for freedom. I can perfectly block an instance if I don't like it, I don't need it decided for me due to defederation, that's the opposite of freedom. Do appreciate your efforts to keep the very worst out.

[–] Myrhial 1 points 1 year ago

I'm a big fan of meal prep. With a freezer you can freeze the extra portions and then thaw things overnight from your built stash. Without I used to just eat the same several days. I don't mind and it was just me :)

[–] Myrhial 1 points 1 year ago

I feel that overthinking due to anxiety is like running on a treadmill. You expend a ton of energy but you've not actually moved forward. Better to apply that energy to preventative measures or solutions. And if it is outside of your control? Well then just like the weather, you need to accept it.

[–] Myrhial 5 points 1 year ago

I immediately angrility opened the comments to respond. I think it's just a side effect of working in this field. I have to be completely literal to the computer so in communication I prefer the same style. I will argue with people on the use of ambiguous language. More so if they are analysts. I can understand the business doesn't always fully grasp the concept but if you give me a functional analysis it best be 100% clear. And yes, I've been tested for autism, it certainly flagged up as a possible trait, but it's hard to know if this hasn't just become an ingrained preference. Sure does help me when communicating with neurodivergent people, and I've heard from several neurotypical people as well that they actually appreciate the clarity!

[–] Myrhial 1 points 1 year ago

It's actually quicker to make one of the former than it is of the latter these days. Or people have only been taught in school / bootcamp how to make the former. So it doesn't get questioned.

[–] Myrhial 6 points 1 year ago

We'll need to ensure that this bias against female (and also male) patients isn't adopted by the AI. We're already not properly testing medicine on both sexes. Medical textbooks often list stuff as more or less common in one sexe. This is entirely possible but if the data isn't properly screened we're just moving the problem. Data can exist and be wrong for many reasons. We should address that urgently. It is bad for everyone. I think it is plausible an AI could have reached the same conclusion here because of all the mental health problems considered far more common in women. Did anyone ever even check where the source of that data is? Because some stuff really hasn't been rechecked in the last 50 years I'm sure.

[–] Myrhial 12 points 1 year ago

2 mandatory office days even for consultants. If you want to be at the office, fine. But don't make everyone be because of some so-called fairness. Catering to some imaginary average person isn't fair, it's hurting everyone a little or a lot. Alas since I'm working via an agency, I got to follow client directives. Luckily I have good rapport with both my agency and my project team lead so I can kinda toe the line.

Also the inability or rather unwillingness of my fellow devs to follow protocol. Ticket not approved by business? You don't touch it. Yet the geniuses I work with went total yolo mode on a project I'm not on. So I wasn't there to remind them and now they're upset they got told off they spent a week on tickets that they were asked to discuss with the business. And that they aren't getting praise for their efficiency. It's government work, not your hobby project. That's a week of budget spent on work they may need to reverse because they didn't even put it on a branch. Maybe when they hear it from higher up they'll listen because I really get the impression when it comes from me it is seen as my personal opinion. No, I just figured out early how the office politics work and play the game I'm paid for. I voice my opinion plenty but here it actually aligns with the organisation expectations.

[–] Myrhial 1 points 1 year ago

Considering that these families are often poorer than the average, is it possible that some showed up wearing them because that's all they got? You can take off a headscarf but if that's your dress, what are you supposed to do? I'm sure a school might have some spare gym clothes but nobody is gone make do with that for everyday wear. And yes, it was probably announced beforehand, but even without the language barrier and without religion being pushed from home, some families simply can't just afford one or more new sets of clothes on short notice. Not to mention also, if generational that's what you've worn, and maybe it is homemade, how do you suddenly dress differently? It's a big adaptation. I feel this is much harsher than removing a cross necklace.

[–] Myrhial 2 points 1 year ago

Not to this scale, but my partner's father has spent a fair bit of money doing upgrades and repairs that are technically for the landlord. However, I should note that the contract isn't registered, meaning the landlord cannot index the rent. This also makes it hard to hold the landlord responsible for doing any repairs. On the other hand, renter can't be held responsible for modifications either. So legally there is more freedom on either side. Thing is, the renter can always demand registration. But usually this means no renewal of the contract. It's very likely here the property would get sold and even if he brings up the money, it may be sold to someone else. So the short answer is really that people in poverty often don't know or don't dare to stand up for their rights and loopholes like this keep existing because you can get a cheaper rent on a building not up to standards.

[–] Myrhial 2 points 1 year ago

Recently listened to it. Appreciate them looking at the various angles. The history bits are excellent, once again I learned things about people of colour which I wouldn't have otherwise.

I've actually been to Iceland several times, and once I took the chance to try whale after much assurance from a local that when it comes to ethics, it's fine and within quota. That said, I wish I had the willpower to be a vegetarian. It would be ideal to me if we no longer needed any animals to sustain ourselves. But some foods are just too good and don't have perfect replacements yet. I hope that with lab grown meats whale will also become an option. So that they can live free and full lives. Unless the one guy on the show was right about overpopulation. I didn't feel he was the best source. But wildlife management is a thing, especially since we're meddling in nature, so now we're responsible too. It's a tough and emotionally changed subject.

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