this post was submitted on 25 Apr 2024
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Sorry friend, that sounds really hard. I'm really sorry you lost your mum.
Someone I knew with colitis said it calmed down by itself after about a decade, so I hope that happens to you.
I'm hoping it calms down when I get out on a different medication. The new one I'm on doesn't seem to be working despite the fact according to the manufacturer it should start working in 48 hours and I should've noticed a gradual difference at this point and it should work fully within 3 weeks. Anyway there's a specialist nurse that's my main point of contact for care for it and she wants to put me on a biologic that's taken as an IV drip which would mean I'd see an improvement quickly. The consultant that makes the decisions and has the final say disagrees and wants me still on the one that doesn't seem to work. I'm in hospital again after only leaving a month ago and my symptoms are worse today so the current treatment that I'm on in hospital may not be working so the nurse might end up winning the argument. I'm hoping she does because I'd love to get rid of the flare I've had since January and feel like normal again.