this post was submitted on 12 Apr 2024
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[–] conquer4@lemmy.world 37 points 7 months ago (3 children)

I can't even come close to imagining her medical bills, can you?

[–] Asafum@feddit.nl 26 points 7 months ago (5 children)

Is she "ok" now? The last I knew she was completely incapacitated and couldn't get out of bed. One hell of "long covid" case... :(

[–] CleoTheWizard@lemmy.world 18 points 7 months ago

That video is a really hard watch. If you’ve ever been in either of their positions taking care of a family member full time or relying on someone, you know the tremendous amount of love involved in it. Usually you see it as an afterthought, but what was amazing about Destin’s video is seeing it happen in real time.

[–] SoleInvictus@lemmy.blahaj.zone 16 points 7 months ago

I have one of the conditions some doctors suspect is the root cause of long COVID, mast cell activation disorder, and it absolutely sucks ass if it's uncontrolled. It can make for some amazing naps, but they get old when it's all you can do.

I'm fine'ish now, although I guzzle the contents of a small pharmacy every month.

[–] Wanderer@lemm.ee 9 points 7 months ago (1 children)

I.didnt know her at all before this comment chain.

But it is interesting.

By big fear short of everyone dying in covid was these symptoms would be far more widespread.

Everyone seems to have forgotten about covid now

[–] melpomenesclevage@lemm.ee 0 points 7 months ago

No. No, we remember, Americans just pretend it doesn't exist.

[–] EnderMB@lemmy.world 4 points 7 months ago

Her Instagram is kept fairly up to date. She is still confined to a bed, and it sounds like she still requires round-the-clock care. Her partner and family are absolute heroes.

[–] chuckleslord@lemmy.world 4 points 7 months ago (1 children)

Quotes being used for sarcasm or emphasis. The world may never know

[–] Asafum@feddit.nl 13 points 7 months ago (1 children)

I used the quotes because seeing her condition before I can't imagine she's going to be 100% better. I just meant to ask if her condition improved at all that she would be able to make another video knowing that ok isn't going to mean perfectly healthy. The long covid quotation was just because that's what we call it colloquially but I don't think that's a real diagnosis. I'm not a covid denyer or anything lol

Seeing another comment though I see the video being discussed was before she got sick.

[–] Natanael@slrpnk.net 5 points 7 months ago

Long covid is just a common name for a collection of post viral sequelae caused by the virus. It's not a single disease.

[–] CosmicTurtle0@lemmy.dbzer0.com 11 points 7 months ago (1 children)

The videos were made before she got long covid. I don't know how well she's doing now. My only updates about her are from the host of veritasium and only when I go looking for his videos.

[–] General_Shenanigans@lemmy.world 3 points 7 months ago

Destin from Smarter Every Day visited them. https://youtu.be/xbcjf-hrOAs?feature=shared

[–] Cethin@lemmy.zip 7 points 7 months ago* (last edited 7 months ago) (1 children)

She can't even make videos in her current state. This was done well before then. The fact that she is able to have the medical care she has now is a sign she didn't need that money though. She was obviously making enough from other more ethical sources. Now if she made that, I could excuse it, but it wasn't done now.

That said, her medical bills shouldn't be an issue for anyone. There are people out there in the same state but with much less support. They shouldn't have to suffer even more because they can't afford it.

[–] Liz@midwest.social 6 points 7 months ago (2 children)

She's still got an income from Patreon, though I don't know how much it is. Also, depending on her income and savings level she could have coverage through Medicare or Medicaid. Source: I'm a young person with CFS that is on one of those two because I'm too fucked up to do anything remotely approaching work.

[–] Cethin@lemmy.zip 3 points 7 months ago* (last edited 7 months ago)

For sure she's still making some money and receiving support. Her channel has also been reuploading clips of old content as shorts. I'm certain it doesn't keep pace with what it used to though, plus she's got mounting bills. I'd understand if she did something desperate right now basically, but not at her peak.

[–] melpomenesclevage@lemm.ee -3 points 7 months ago (1 children)

Oof. I'd offer psychadelics, seen implications they can sometimes help with that sort of thing; potentially resetting the thinky bits of the immune system and stuff, but I have no idea where you are.

[–] Liz@midwest.social 2 points 7 months ago (2 children)

No worries, I got a great doctor that's helping pull me out. Hydroxychloroquine is the main drug that's helping me. I just have to stop making mistakes, which is harder than you would think. I didn't know psychedelics acted on the immune system, I figured any help they offered would be related to the default mode network (DMN).

[–] melpomenesclevage@lemm.ee 4 points 7 months ago

Dunno, I didn't see in depth medical shit. Was about mushrooms and cacti more than LSD, but honestly I'd advise you to just explore-it's fun as fuck anyway.

[–] melpomenesclevage@lemm.ee -1 points 7 months ago

Oh, also, psychadelics can be enjoyed while you sleep. Some of them.