Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

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This is a new place for people coming from r/cfs.

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom.

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Was bed bound with post covid for 2-1\2 years now I have a somewhat normal life. (lemmy.blahaj.zone)

submitted 10 months ago by StoneGender@lemmy.blahaj.zone to c/cfs@feddit.de

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So the biggest thing I had to figured out was all my allegeries. Fragrance is the biggest one, its in everything and I can't be around it at all. It took 6 months to get rid of all of it and is a constant effort to keep out of my living space. I have met multiple other people who has this same allergy. Cutting gluten out of my diet also helped a lot. HEPA 13 air purifiers are a must. And these are the meds I'm currently on: Gabapentin 300mgx3 daily ALA 300mgx3 daily Tumeric 500mgx3 daily Benadryl liquid gels 25mgx3 daily Loratadine 10mgx1 daily Azelastine HCI 205.5 mcg spray 4 times daily Probotics 1x daily Bio-identical hormones to correct hormone imbalance I smoke tar free cigarettes for brain fog and nausea Microdose of psilocybin 400mg of fungal material 4 times a week for migraines and brain fog. Let me know if you have any questions. I know how awful it feels to have this with no end in sight.

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[–] StoneGender@lemmy.blahaj.zone 1 points 9 months ago* (last edited 9 months ago) (1 children)

Thank you! ALA is Alpha lipoic acid, it has been shown to reduce neuropathy in sensory and autonomic nerve systems. Its also an amino acid in the ATP reaction. Gabapentin is mostly for migraines and brain fog and neurological functions it can Also help with vagus nerve inflammation and neurons in the gut . I also had epilepsy triggered by covid so it helps with that too for me.

[–] Kornblumenratte@feddit.de 2 points 9 months ago

Being a coenzym in the pyruvate dehydrogenase complex, alpha lipoic acid seems to be a good way to booster mitochondrial function. Sounds interesting. Thank you.