this post was submitted on 25 Sep 2023
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This is the best summary I could come up with:
Emma Heming Willis also told Today’s Hoda Kotb in an interview broadcast on Monday that she has been a “care partner” to her husband since the moment of the diagnosis.
Heming Willis spoke as she continues to advocate for people living with the condition known as FTD, whose symptoms include emotional problems, trouble communicating, struggles with walking and difficulty working, according to the National Institute on Aging.
Bruce Willis first stepped away from acting in March of last year after his family publicly revealed he was dealing with aphasia, a neurological condition that impairs people’s language processing, including their ability to read and write.
Since then, coming to terms with her husband’s condition has been a “blessing and a curse” for Heming Willis, she told Kotb in Monday’s interview.
Susan Dickenson, the chief executive officer of the Association for Frontotemporal Degeneration, said on Today that the disorder can manifest in “unexplained changes in how a person is in the world”.
Dickenson added: “Somebody who normally speaks absolutely fine has trouble putting their thoughts into meaningful sentences, or they may lose the meaning of a specific word.”
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