this post was submitted on 14 Aug 2023
195 points (87.9% liked)

Ask Lemmy

26890 readers
1659 users here now

A Fediverse community for open-ended, thought provoking questions

Please don't post about US Politics. If you need to do this, try !politicaldiscussion@lemmy.world


Rules: (interactive)


1) Be nice and; have funDoxxing, trolling, sealioning, racism, and toxicity are not welcomed in AskLemmy. Remember what your mother said: if you can't say something nice, don't say anything at all. In addition, the site-wide Lemmy.world terms of service also apply here. Please familiarize yourself with them


2) All posts must end with a '?'This is sort of like Jeopardy. Please phrase all post titles in the form of a proper question ending with ?


3) No spamPlease do not flood the community with nonsense. Actual suspected spammers will be banned on site. No astroturfing.


4) NSFW is okay, within reasonJust remember to tag posts with either a content warning or a [NSFW] tag. Overtly sexual posts are not allowed, please direct them to either !asklemmyafterdark@lemmy.world or !asklemmynsfw@lemmynsfw.com. NSFW comments should be restricted to posts tagged [NSFW].


5) This is not a support community.
It is not a place for 'how do I?', type questions. If you have any questions regarding the site itself or would like to report a community, please direct them to Lemmy.world Support or email info@lemmy.world. For other questions check our partnered communities list, or use the search function.


Reminder: The terms of service apply here too.

Partnered Communities:

Tech Support

No Stupid Questions

You Should Know

Reddit

Jokes

Ask Ouija


Logo design credit goes to: tubbadu


founded 1 year ago
MODERATORS
 

I'm just curious about this. As someone with a chronic illness, I pretty much never hear anyone talk about things related to the sorts of difficulties and discrimination I and others might face within society. I'm not aware of companies or governments doing anything special to bring awareness on the same scale of say, pride month for instance. In fact certain aspects of accessibility were only normalized during the pandemic when healthy people needed them and now they're being gradually rescinded now that they don't. It's annoying for those who've come to prefer those accommodations. It's cruel for those who rely on them.

And just to be clear, I'm not suggesting this is an either or sort of thing. I'm just wondering why it's not a that and this sort of thing. It's possible I'm not considering the whole picture here, and I don't mean for this to be controversial.

you are viewing a single comment's thread
view the rest of the comments
[–] misnina@crystals.rest 4 points 1 year ago

For those asking for something that needs help/awareness, chronic pain sufferers (and disabled, but speaking from chronic pain myself) pretty much always have diminished mental clarity due to being in pain or stressed all the time. We can be seen as lazy when we don't have a job or have a hard time contributing, but I think people don't realize that getting medical shit done in america is like a full time job. The amount of hoops you need to jump through, repeat appointments to get your doctor to actually listen to your concerns, dealing with administration of doctors, insurance, and government because THEY STILL COMMUNICATE THROUGH FAXES, and just being dead tired of being a broken human being. You have to shout and scream basically or you will be pushed to the wayside.

So basically, please be aware of invisible illnesses and have patience. We may have the physical capability to do a task on a good day, but shit can get so beaten down. Also medically insurance covered, like, managers/secretaries that help you navigate this bullshit would be great. A real job as a medical advocate for a person should exist.

There could also be more awareness spread against the stigma/stereotype of people coasting off disability. (Often it's snuffed when it's mental) It's not really enough to live on, it can be taken away extremely easily, you have to resign yourself to poverty because if you can make some money you aren't truly disabled. That and disability submission takes 6 months to process, in which most people are denied first just cause. so they then have to get a lawyer to appeal, which takes months+. It's hard to get disability, and it gives you scraps.