Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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I have chronic headaches and migraines and I do hallucinate smells quite frequently. Have been doing so for about 15 years.
It used to be mostly peanut butter, now it’s mostly a specific incense I used to burn when I was a teen (haven’t burned it in years). Which is good because I hate peanut butter.
It’s a bit unnerving, but not actively harmful according to my neurologist; crossed wires. I’ve gotten in the habit of asking people if they can smell anything, or just ignoring it.
People don’t like to talk about hallucinations, because it’s often seen as a sign of being crazy, but happen to more people and more often than you’d think, any type of hallucinations. Our brains are really finicky, and there are more ways to go wrong than work right.
There’s a book by Oliver sacks called hallucinations that’s quite good. He’s a man who studied neurological disorder, and did a lot of drugs to experience some of the same things as his patients. Very good read if you hallucinate, imho.
Thank you. As I'm sure you know, it's pretty weird and concerning. I'm looking forward to reading that book.