this post was submitted on 07 Nov 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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Our internet went down an hour ago and I have to contend with the crappy metered connection in my phone. Really strange feeling how isolated I suddenly am. Took a while until all my family member's phones switched from wifi to mobile.

My laptop, which is my usual connection to the world, is still out. Guess I'll open up a hotspot. Until all my data is gone.

Very humbling.

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[–] pipe@lemmy.world 3 points 1 week ago

I hope you'll be okay! Maybe you can brainstorm some other solutions to have ready for the next time it happens, to keep you busy? Perhaps some magazines since they're not too heavy and tend to be light in content as well.

Is there anyone you can call for a chat? Five minutes or so would probably help your mood if you are up to it.

[–] Fiivemacs@lemmy.ca -3 points 1 week ago (2 children)
[–] bjoern_tantau@swg-empire.de 2 points 1 week ago* (last edited 1 week ago) (1 children)

I am literally too weak to do almost anything besides binging stupid YouTube videos. When that's gone I might as well be dead.

[–] Fiivemacs@lemmy.ca -3 points 1 week ago (1 children)

Sounds like some serious depression. May I suggest cat hunting in your neighborhood? Find kitties, and give em some treats and pets

[–] bjoern_tantau@swg-empire.de 1 points 1 week ago

Sounds like some serious depression.

It's not.

[–] pipe@lemmy.world 1 points 1 week ago (1 children)

I don't know that this terseness and tone is helpful when someone is clearly feeling at a low point. Sometimes people are just reaching out because they don't know what to do, and have lost perspective because they've become isolated.

[–] Fiivemacs@lemmy.ca 0 points 1 week ago (1 children)

how'd you get tone from 5 words of text...

also, I asked a question to better understand what they are saying, but fuck me for wanting to know right?

Not everything is an attack. Stop putting your emotions into someone else's words. Looks bad on you.

[–] pipe@lemmy.world 2 points 1 week ago

I am sorry I've offended you. I'll take what you said seriously and watch myself closely in the future to make sure I'm not projecting.

What I was trying to say is that I think it's good to take extra care choosing words and approach when someone is having a hard time. Maybe you did do that, and we just disagree about the result.