this post was submitted on 07 Dec 2024
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Chronic Illness
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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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While I love spoon theory I think it's a poor metaphor to use for general audiences as it requires a lot of context. I guess this tweet is not really targeted at everyone, but just a rant to their circle.
What metaphor would you suggest instead? At least in my experience, the term is becoming understood more and more by the mainstream.
If the original tweet was for the general audience, just replace with "energy". That's it. The term is more understood in our bubble only. You are suffering from bias.
Jargon is usually used to make oneself feel "in", but it by design excludes everyone else from the conversation.
I come from a mental health background and spoons is excellent for anyone. It needs explaining, sure, but neurodivergent people can use spoons to explain the cost of their executive dysfunction, people with depression can use spoons... hell, people free from illness can use this expression, too!
I get being bitter about jargon but it's an extremely versatile and easy-to-understand metaphor. I think the aim here should be to share it more, rather than try to label it as improper to include.
Yes, if you have the chance to explain. If you can't, talking about spoons just confuses people.
I get that spoons are a tangable and limited resource, and that part provides for a better example. But the part that doesn't work well is that spoons have a specific value and use case. Like, you could still operate pretty normally without a spoon.